Let’s Cure CP is a non-Profit that was founded this past April. The two families that founded the organization are the Dunay’s and the Drambel’s. I’m honored that I was asked to be one of the first people to join the board. As a board member I have led all the efforts to build our social presence and most of the efforts to maintain our website. I’m also currently building a packet for those interested in how they can support Let’s Cure CP.
What is Let’s Cure CP
Let’s Cure CP is a non-profit organization (501C3) committed to funding the support of Cerebral Palsy (CP) research. All of our available funds will go directly to research institutions to fund studies and clinical work that will ultimately cure cerebral palsy.
We will accomplish our mission by undertaking and supporting initiatives at research institutions around the country that focus on developing new therapeutic methodologies for the treatment of Cerebral Palsy.
CP occurs in approximately 2-3 in 1,000 births. Unfortunately, there is very little research being done to overcome and abate CP. Let’s Cure CP was created in the hopes of finding promising and alternative treatments for this debilitating condition.
Let’s Cure CP really had a banner first year. We raised over $20,000 and funded the first round of research at two institutions. At the Georgia Medical College we funded the first phase of the Allogeneic research study and at the University of Texas Houston we funded the first part of their application to the FDA for an Autologous stem cell study. We also presented to world leading researchers who have various animal models examining the effects of Cerebral Palsy on and brain damage on animal development. We had our 501C3 status approved. We’ve built a growing and active community on Facebook. And we have started working with Duke University to provide PR for the work they are doing with Cord Blood Stem Cells.
What can you expect from LCCP in 2011
In 2011 LCCP will be aggressively fundraising to achieve a goal of raising $600,000 to help completely fund the studies mentioned above. In addition to fundraising for these studies we will be sharing and providing information about stem cell therapies to parents and the CP community. One of the activities we have planned includes doing live seminars with the scientists that are conducting the studies. We don’t have exact dates for this yet but you can expect the first seminar to be during the first quarter of 2011. We will also continue to share and grow our Facebook and twitter communities.
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